The mission of the Sarcomeric Human Cardiomyopathy Registry (SHaRe) is to build a community of cardiovascular geneticists and research-based cardiologists who have in common a profound dedication to helping patients with heritable heart disease.
By collaboratively expanding the knowledge base, SHaRe will generate fresh insights and research initiatives with the ultimate goal of supporting the development of novel therapies where none exist today.
Patients and their families will play an active and critical role in this community, through participation in research, advancing patient advocacy, and increasing community awareness. This partnership is crucial in improving the science and shedding light on the mystery surrounding inherited cardiomyopathies. Together, we will shed light where before there were many shadows.